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The needs of professionals in the palliative care of children and adolescents

Bergstraesser, Eva ; Inglin, Susanne ; Abbruzzese, Rosanna ; Marfurt-Russenberger, Katrin ; Hošek, Martin ; Hornung, Rainer

In: European Journal of Pediatrics, 2013, vol. 172, no. 1, p. 111-118

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    Title
    • The needs of professionals in the palliative care of children and adolescents
    Author
    • Bergstraesser, Eva. Department of Pediatric Palliative Care and Oncology, University Children's Hospital Zurich, Steinwiesstrasse 75, 8032, Zurich, Switzerland
    • Inglin, Susanne. Psychological Service for Children Cantone of Schwyz, Poststrasse 1, 8853, Lachen, Switzerland
    • Abbruzzese, Rosanna. Department of Pediatric Palliative Care and Oncology, University Children's Hospital Zurich, Steinwiesstrasse 75, 8032, Zurich, Switzerland
    • Marfurt-Russenberger, Katrin. Diasan Beratung GmbH, Zollikerstr. 57, 8702, Zollikon, Switzerland
    • Hošek, Martin. Department of Social Work, University Children's Hospital Zurich, Zurich, Switzerland
    • Hornung, Rainer. Department of Psychology, Social and Health Psychology, University of Zurich, Binzmühlestr. 14, Box 14, 8050, Zurich, Switzerland
    Document Type
    • Postprint
    OAI-PMH Identifier
    • oai:doc.rero.ch:321063
    Summary
    The main objectives of this qualitative study were to describe the perceptions and needs of pediatric health care professionals (HCPs) taking care of children with palliative care needs and to develop a concept for the first Center of Competence for Pediatric Palliative Care (PPC) in Switzerland. Within two parts of the study, 76 HCPs were interviewed. The main interview topics were: (1) definition of and attitude toward PPC; (2) current provision of PPC; (3) the support needs of HCPs in the provision of PPC; and (4) the role of specialized PPC teams. HCPs expressed openness to PPC and reported distinctive needs for support in the care of these patients. The main tasks of specialized PPC teams in Switzerland would encompass the coaching of attending teams, coordination of care, symptom control, and direct support of affected families during and beyond the illness of their child. Conclusion: This study indicates the need for specialized PPC in Switzerland both inside and outside of centers providing top quality medical care (Spitzenmedizin). Specialized PPC teams could have a significant impact on the care of children and families with PPC needs. Whether hospices are an option in Switzerland remains unanswered; however, a place to meet other families with similar destinies was emphasized