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"We the Scientists”: a Human Right to Citizen Science

Vayena, Effy ; Tasioulas, John

In: Philosophy & Technology, 2015, vol. 28, no. 3, p. 479-485

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    Titre
    • "We the Scientists”: a Human Right to Citizen Science
    Auteur
    • Vayena, Effy. Institute of Biomedical Ethics, University of Zurich, Pestalozzistrasse 24, 8032, Zurich, Switzerland
    • Tasioulas, John. Yeoh Tiong Lay Centre for Politics, Philosophy, and Law, The Dickson Poon School of Law, King's College London, Somerset House East Wing, WC2R 2LS, London, UK
    Type de document
    • Postprint
    Langue
    • Anglais
    Publié dans
    • Philosophy & Technology, 2015, vol. 28, no. 3, p. 479-485. Springer Netherlands
    Autre version électronique
    Identifiant OAI-PMH
    • oai:doc.rero.ch:332653
    Summary
    The flourishing of citizen science is an exciting phenomenon with the potential to contribute significantly to scientific progress. However, we lack a framework for addressing in a principled and effective manner the pressing ethical questions it raises. We argue that at the core of any such framework must be the human right to science. Moreover, we stress an almost entirely neglected dimension of this right—the entitlement it confers on all human beings to participate in the scientific process in all of its aspects. We then explore three of its key implications for the ethical regulation of citizen science: (a) the positive obligations imposed by the right on the state and other agents to recognize and promote citizen science, (b) the convective nature of the participation in science facilitated by the right and (c) the potential to mobilize the right in rolling back the unprecedented expansion of intellectual property regimes.