Fulltext

Adherence to guidelines in the clinical care for adults with congenital heart disease: The Euro Heart Survey on Adult Congenital Heart Disease

Engelfriet, Peter ; Tijssen, Jan ; Kaemmerer, Harald ; Gatzoulis, Michael A. ; Boersma, Eric ; Oechslin, Erwin ; Thaulow, Erik ; Popelová, Jana ; Moons, Philip ; Meijboom, Folkert ; Daliento, Luciano ; Hirsch, Rafael ; Laforest, Valérie ; Thilén, Ulf ; Mulder, Barbara

In: European Heart Journal, 2006, vol. 27, no. 6, p. 737-745

Ajouter à la liste personnelle
    Titre
    • Adherence to guidelines in the clinical care for adults with congenital heart disease: The Euro Heart Survey on Adult Congenital Heart Disease
    Auteur
    • Engelfriet, Peter. Department of Cardiology, Room B2-240, Academic Medical Centre, Meibergdreef 9, 1105 AZ Amsterdam, The Netherlands
    • Tijssen, Jan. Department of Cardiology, Room B2-240, Academic Medical Centre, Meibergdreef 9, 1105 AZ Amsterdam, The Netherlands
    • Kaemmerer, Harald. Department of Paediatric Cardiology and Congenital Heart Disease, Deutsches Herzcentrum, Munich, Germany
    • Gatzoulis, Michael A.. National Heart and Lung Institute, Imperial College, London, UK
    • Boersma, Eric. Thoraxcenter, ErasmusMC, Rotterdam, The Netherlands
    • Oechslin, Erwin. CardioVascular Center, Division of Cardiology, University Hospital Zurich, Switzerland
    • Thaulow, Erik. Department of Cardiology, Rikshospitalet, Oslo, Norway
    • Popelová, Jana. Department of Cardiac Surgery, Hospital Na Homolce, Prague, Czech Republic
    • Moons, Philip. Centre for Health Services and Nursing Research, Katholieke Universiteit Leuven, Leuven, Belgium
    • Meijboom, Folkert. Thoraxcenter, ErasmusMC, Rotterdam, The Netherlands
    • Daliento, Luciano. Department of Clinical and Experimental Medicine, University of Padua, Padua, Italy
    • Hirsch, Rafael. Department of Cardiology, Rabin Medical Center, Petah Tikva, Israel
    • Laforest, Valérie. Euro Heart House, Sophia-Antipolis, France
    • Thilén, Ulf. Department of Cardiology, University Hospital, Lund, Sweden
    • Mulder, Barbara. Department of Cardiology, Room B2-240, Academic Medical Centre, Meibergdreef 9, 1105 AZ Amsterdam, The Netherlands
    Type de document
    • Postprint
    Langue
    • Anglais
    Publié dans
    • European Heart Journal, 2006, vol. 27, no. 6, p. 737-745. Oxford University Press
    Autre version électronique
    Identifiant OAI-PMH
    • oai:doc.rero.ch:293901
    Summary
    Aims To investigate the role of guidelines in structuring the clinical care for adult patients with congenital heart disease (CHD), and to assess adherence to the guidelines in Europe. Methods and results A selected number of current guidelines were chosen pertaining to operative procedures, investigations, and the use of medication (‘interventions'). The source for this analysis was the database of the Euro Heart Survey on adult CHD, which contains retrospectively collected data on 4110 patients followed-up for a median of 5.1 years. For each guideline investigated, patients were selected from the database for whom the particular guideline was relevant. The selected cases were classified according to two criteria: was there an indication for the particular intervention and did the intervention take place? In this manner, cases of ‘undue treatment' and ‘insufficient treatment' were identified. Adherence to guidelines was found to be good in the case of operative procedures and prophylactic drug treatment. However, regarding diagnostic procedures there had been adherence to guidelines in only slightly more than half of the cases. Conclusion Guidelines have an important role in the actual clinical care of adults with CHD. However, large outcome studies are needed to develop more precise guidelines